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©2017 by CHAMP1 Patient Support Group. 

March 23, 2018

We no longer live in the world of being undiagnosed and for that I am truly grateful. We have our support network, those who were there before our diagnosis and remain beside us on our new journey. We now have all of our other champ families who are walking on the same...

January 29, 2018

As we come to the end of January 2018 I have been looking back on the last couple of years and reflecting. When we received our son's diagnosis we felt just as isolated if not more so as we now knew what it was but couldn't find any information on it.  The medical prof...

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