We have over 100 worldwide families in our Facebook group who have a family member with a diagnosis of the CHAMP1 gene mutation.  

   

The purpose of this Patient Support Group is to support families with the diagnosis and in turn provide a global community.  

 

Our community provides a place of belonging to those who feel isolated by CHAMP1 and to educate those outside the community about this diagnosis.

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Here are some of our Champs....